Adam Chalak
Pronouns: He/Him/His
Research Mentor(s): Yomei Shaw, Postdoctoral Fellow
Research Mentor School/College/Department: Division of Rheumatology, Michigan Medicine
Presentation Date: Thursday, April 22, 2021
Session: Session 5 (3pm-3:50pm)
Breakout Room: Room 13
Presenter: 2
Abstract
Stakeholder perspectives on using patient-reported outcomes: a qualitative study Authors: Adam Chalak, Yomei Shaw, Faith Reger, Neda Kortam, Yujia Li, Dinesh Khanna Background/objectives: Patient-reported outcome measures (PROs) are questionnaires that provide patients coping with disease a medium that essentially places them at the forefront of the decision-making and treatment process. The questions aim to measure patient perceptions of symptoms and health status. Quite recently, we have seen a surge in literature based on this healthcare tool in rheumatology. Although reviewing PRO results helps patients and health care providers communicate about impacts of disease on wellbeing, we see a significant lack of clinical implementation in rheumatology. This qualitative study serves as the pilot study for an upcoming clinical trial of strategies to promote PRO use in rheumatology. We conducted interviews with stakeholders to assess the acceptability of study procedures and materials to rheumatology health care providers and patients. Methods: Semistructured interviews were conducted with healthcare providers and patients in rheumatology over video or phone call. Interview transcripts were transcribed and were subsequently analyzed by qualitative coding through NVIVO software. Results: Eight health care providers, two patients, and three research team members participated in the interviews. Based on comments extracted from the interviews, we see that many HCPs and patients find great significance and relevance in the utilization of PRO data in treatment and patient-self management. However, many clinicians note various logistics issues (such as time management, patient motivation, data interpretation, question difficulty) that hinder implementation. Conclusion: This study provides insight on how PRO measures can be integrated more effectively in the clinical setting while also revealing misconceptions on the tool by HCPs.
Authors: Adam Chalak, Yomei Shaw, Faith Reger, Neda Kortam, Yujia Li, Dinesh Khanna
Research Method: Clinical Research
