Ali Alsayed Kassem
Research Mentor(s): Sunghee Lee
Mentor Department: Survey Methodology Program
Authors:
Session: Session 6 (3:00pm – 3:50pm)
Presentation Type: Poster 112
Abstract
Alzheimer’s Disease and Related Dementias (ADRD) disproportionately affect marginalized communities, yet research participation among these groups remains critically low, perpetuating health disparities and limiting the generalizability of interventions. Existing studies often rely on convenience sampling or broad racial/ethnic categories (e.g., “Asian†or “Latinxâ€), masking cultural and linguistic diversity within these populations. Hybrid Sampling (HybS)—a method combining probability and push-to-web (targeted online recruitment) techniques—has improved representation in public health research, but gaps persist in recruiting granular minority groups and adapting materials to cultural norms.This project addresses these gaps by developing a nationally representative panel of adults aged 40+ using HybS, with intentional oversampling of seven understudied groups: Afro Latinx, non-Afro Latinx, Chinese, Asian Indian, Filipino, Korean, and Vietnamese populations. We co-design culturally tailored recruitment materials and a social network questionnaire through community input to enhance engagement. Through 1-hour multilingual interviews, we gather feedback on study prototypes (e.g., invitation letters, websites) and refine survey instruments. By centering cultural and linguistic inclusivity, this work aims to advance data equity in ADRD research and generate insights that reflect the lived experiences of diverse aging populations.
